This notebook is a living record of Hannah-Rose’s journey.
It’s where her story continues beyond the beginning. A place to share updates, moments of progress, challenges, hospital days, small victories, and everything in between. Some entries are informative, some are emotional, some are simply real. All of them are written with honesty and love.
Hannah-Rose was born with arthrogryposis, and while that diagnosis is part of her story, it does not define her. These entries reflect her strength, determination, and the reality of life navigating medical systems, therapies, and everyday family life with a child who does things her own way.
The Notebook
This notebook exists for connection. For families walking a similar road. For those wanting to understand more. And for anyone who has followed Hannah-Rose from the beginning and wants to keep walking alongside her.
There is no right place to start. Read from the beginning, the latest entry, or wherever feels right to you.
UNDERSTANDING ARTHROGYPOSIS
The name Arthrogryposis comes from Greek arthro meaning joints, and gryposis meaning curved. It’s a word that sounds complicated, almost scary, but at its core, it simply describes stiff or curved joints. For us, it’s the word that first knocked the wind out of me, the word that entered our lives and changed everything.
When Hannah-Rose was diagnosed