This notebook is a living record of Hannah-Rose’s journey.
It’s where her story continues beyond the beginning. A place to share updates, moments of progress, challenges, hospital days, small victories, and everything in between. Some entries are informative, some are emotional, some are simply real. All of them are written with honesty and love.
Hannah-Rose was born with arthrogryposis, and while that diagnosis is part of her story, it does not define her. These entries reflect her strength, determination, and the reality of life navigating medical systems, therapies, and everyday family life with a child who does things her own way.
The Notebook
This notebook exists for connection. For families walking a similar road. For those wanting to understand more. And for anyone who has followed Hannah-Rose from the beginning and wants to keep walking alongside her.
There is no right place to start. Read from the beginning, the latest entry, or wherever feels right to you.
The Casts She Was Never Supposed to Kick Off
It’s hard to explain what it feels like when your child does something the specialists once told you would never happen.
The Question that collapsed America.
After our meetings, calls, and new connections, the plan to get to America felt like it was finally becoming something real. We had support. We had advice. We had direction. And slowly, piece by piece, we started lining up what we needed to make it happen.
We contacted our GP to request a letter supporting travel for medical reasons.
The Tenotomy
Surgery day hits different. You can prep yourself on paper, talk it through with every doctor under the sun, pretend you’re ready, but when the actual morning arrives your whole body calls you out.