Welcome to The Notebook, a blog about Hannah Rose her journey and the awareness we’ve gained along the way. We never intended to create a website; we simply wanted answers. When we discovered Arthrogryposis, we had to figure everything out on our own. Now, everything we’ve learned is here for you, for us, and for anyone who needs it.
The Notebook
It’s honest, sometimes messy, and filled with love and hope. If our story can help even one family, it will be worth it. You’re welcome to walk this path with us you’re not alone, and every step matters. xx
The Casts She Was Never Supposed to Kick Off
It’s hard to explain what it feels like when your child does something the specialists once told you would never happen.
The Tenotomy
Surgery day hits different. You can prep yourself on paper, talk it through with every doctor under the sun, pretend you’re ready, but when the actual morning arrives your whole body calls you out.
The Question that collapsed America.
After our meetings, calls, and new connections, the plan to get to America felt like it was finally becoming something real. We had support. We had advice. We had direction. And slowly, piece by piece, we started lining up what we needed to make it happen.
We contacted our GP to request a letter supporting travel for medical reasons.